6.

I wasn't really thinking about blogging today but my best friend Luka and I facetimed earlier and she was like; "HAVE YOU BLOGGED? People are really invested and learning about how sick you are blah blah" and I wasn't going to because I need to be in some sort of mood and feel like I have something to tell y'all so I decided to do what I was told and have a little ramble, it's good for me anyway.

It turns out I do have some pretty big stuff to chat about anyway!

Last week I met with my new neurologist (referred from and a 'mate' of my guy in Melbourne' We had a quick chat, he had read my notes and we spoke about how I was already seeing a pain specialist and he thought the best thing for me would be to continue seeing him for treatment and maybe come back for one more go at medical botox as he may hit the trigger points better etc.

He then went on to mention that in my notes it mentioned my ulnar neuropathy in my left arm and that the refferall had stated it was in remission... which isn't true, my pinky finger basically always feels like all the bones are smashed and the pain is spreading to my ring finger, however, my previous neuro wasn't concerned about it even though an EMG had shown I had already lost 20% off the nerve function in my ulnar nerve (this seemed like a pretty big deal to me but he knows best right?)

WROOOOONNNGGGGG

But I was like, my migraines are all I give a fuck about and I can cope with it so whatever.

My new neurologist noted I have visible muscle wastage already throughout my left hand and I require urgent surgery to have it fixed. I luckily got a super fast MRI on my elbow so they can see where the nerve is stuck, unfortunately the hardest body part to scan is the elbow and I had to lay on my front with all my weight on my jaw for 20 minutes which did bloody wonders for my TMJ for the next few days.

I go back to the neuro tomorrow to have a new EMG and to find out when I will be having surgery/meeting with the neurosurgeon. 

Isn't my life just ridiculous?

Today I also met with a pain psychologist for the first time, I am not really sure what our aim is yet, we just chatted about my issues and it was good to have someone be like 'yeah exactly people don't get that blah blah blah' that is actually qualified to say that haha.

We also discussed me going on the disability pension, not just for my physical health issues but also for mental health issues, I will be seeing her next week to get a letter to go to Centrelink to tell them what my issues are and why I cannot work (I might do my next post about this in more detail) and I have already started the process with Centrelink and will be going on Newstart as a non job seeker in the interim. 

We also found out that Mum can apply for carers allowance before I am even on disability which is great, she is currently spending her time looking after me, driving me around, force feeding me my tablets and supporting me when I can't poo and then cleaning up after me when I have shat myself two days later oh and of course hugging me through every single depressive episode. I'll let you guys know how it all goes tomorrow.  

Don't shit yaself in the meantime, it is SO annoying.

It is time for my sleeping tablets and some nightmares

Love, subscribe and talk about this rubbish more with your mates, it's important. 

xo 

#chronicillness #migraine #neuropathy #surgery #migraine #australia #Chronicillness #Chronicdailyheadache #chronicmigraine #cubitaltunnelsyndrome #invisibleillness #mentalhealth #mentalillness